The first time I saw Bailey, I was walking through the atrium of the Robin Hood learning centre, a kind of school, employment placement service, and sheltered workshop serving a population with developmental disabilities. Bailey was the embodiment of poise as he leaned back in his chair with the casual confidence of a crime boss holding court at the back table of a greasy spoon joint. He’s bald on top and has a belly, combined with an air of self-possession; he’s a miniature Down Syndrome version of Tony Soprano.
He eyed me, assessing me as I walked toward him, measuring me. His red beret bobbed up and down as he nodded to me, “Hello, my friend. How are you today?”
“Not bad,” I replied. “And how are you?”
“Oh, not much.” I came to learn that this was a quirk of his. If ever asked how he was doing, he would answer, “Not much.”
He may have been the coolest guy I’d ever met. He was smoky jazz, an after hours club, a red convertible on a hot day. I said to myself, “I gotta work with this fucking guy.” From one of the other staff I found out where he lived and I set myself up to do an orientation at his residence. He made me laugh out loud on that first day. Bailey is a brittle diabetic and requires insulin four times a day. The injection location changes and is regularly rotated, and the staff doing the orientation, a very pregnant Filipino woman, asked, “Okay, Mr. Bailey, where do we stick this?” as she held up the needle. She was sitting at the kitchen table and Bailey stood beside her. He pulled up his top and squeezed a portion of his sizeable belly, pointing it toward her and saying, “Right here baby! That’s the juice!” The staff laughed and pointed to his belly: “Who’s the pregnant one around here? You or me?” Bailey laughed his wheezy laugh and shook his head, clearly enjoying the banter, and summed it all up with an “Oh, Jethuth Chwiste.”
This was the beginning of a 17-year friendship.
Categories: Non-Fiction, Personal
Tags: Developmental Disability, diabetes, down syndrome, group home, robin hood, sheltered workshop
You have the storyteller’s gift.
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Thank you John. I really appreciate that.
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i’m hooked.
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Good! That was the plan.
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worked like a charm. speaking of charm…that bailey has tons of it! 😊
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He does. I was always 10 points cooler just by hanging out with him.
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Definitely sounds like a cool guy. Great sense of humor too. This world is a tough place without one.
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It really would.
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I love him already. 🙂
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I thought you might.
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I cannot wait to hear more about him John!
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Thanks Nancy. I’m glad to hear that.
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I have this feeling that this will be one of those true stories that is better than anything a fiction writer could come up with. I’m intrigued and look forward to the upcoming installments. Everybody should know somebody like Bailey, I think.
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Thank you. Of course I agree with you that everyone should know someone like Bailey. He has made my life richer.
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I’m not even sure how to explain it, but we all need a Baily in our lives.
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Real life stories…beats even the very best fiction. Write on, John. ☺
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Thanks Van.
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Okay, I just finished this one and am ready for the next one. Immediately. Get cracking, John.
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Hahahaha. Thanks Barb. I will post as soon as possible.
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Wish I’d known him m.
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He is one of a kind.
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So many people look down on those who have Down’s Syndrome. They look different, they talk different, they’re dumb. Well, what if someone were to stop and criticize you for how you look, or act, or talk? Some of the most beautiful minds, reside in those with Down’s Syndrome.
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This is very true. Thank you for such a lovely sentiment.
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Thems my peeps.
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True Dat!
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Gonna say it again — love your writing style. Can’t wait to read more about your and Bailey’s friendship.
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Thank you so much.
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Ah he sounds amazing! Can’t wait to read more about him!!
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Shit. This happens every time!
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He really is. Stay tuned.
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Ha – love it! He sounds like a great character, they make life so much more colorful.
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They sure do.
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Precious.
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